Cuedernillos para contribuir a la autonomía bioética mediante el fortalecimiento de la compresnsión de la carta de consentimiento informado en pacientes oncológicos en Solca de Cuenca

Abstract

This project developed in the Ecuadorian Cancer-Fighting Society (SOLCA) established as an objective to strengthen the bioethics autonomy of cancer patients (children and adults) through booklets focused on reading comprehension strategies and activities that improve the understanding of the informed consent letter. Bioethics autonomy is a principle that recognizes the importance of a patient to make free and informed decisions about his health. Bioethics autonomy is closely related to the informed consent letter, where the patient authorizes the intervention based on the knowledge on 4 axes; diagnosis, treatment, side effects, and recovery processes. The project developed a diagnosis of bioethics autonomy in cancer patients, showing that most do not know and do not understand the IC letter. In search of a solution to this problem, this project creates two booklets, one for children and one for adults. The booklets that focus on reading comprehension strategies include dialogic and emotional recognition activities to support the Informed Consent letter comprehension processes. The booklets recognize and respond to the patient's condition, their cognitive and emotional affectations, their level of education, and their level of reading comprehension. The evaluation process of the booklets was through expert judgment and prototyping. Education is not only found in the school context but is also present in non-formal spaces such as hospitals